WORLD DUCHENNE AWARENESS DAY - Thalirum Tharunangal

This year’s World Duchenne Awareness Day was special to all of us. We had our kids and their perform at length on stage. This day every year marks a day to honor the immense dedication of these parents and the health professionals throughout the world.

The awareness day celebrations started with the DMD kids from different parts of the state talking about their dreams and their aspirations. We were able to capture few of those dreams.

Generally there are events every year to celebrate with the kids and their parents where professionals would perform. This time around we had planned to actively involve the parents their families and their kids. There was a conspicuous consent when the idea was floated around. Then the practice sessions for the parents and the kids were planned out meticulously and the feedback was heartening and seeing their participation felt like they were over the moon the whole week until the event. The event had the kids perform to few Indian songs, one song on the grea Sufi Saint Khwaja Moinuddin Chisti. The mothers had a ball in dancing to trending tunes of 2017 and the father showcased their free spirited dancing flair on stage.

This to us marks an important event for the Duchenne community in general and also to understand the impact of Art on Mankind. The glee in their faces spoke a thousand words. It is an achievement of the parents who are in tremendous pressure and in a sober situation, to come out and perform. The event was named as ‘Thalirum Tharunangal’, which literally translates to budding moments. It is just to convey that there exists just the moments of their kids with them. The event was something of a reminder of our lives and the necessity to act with understanding and reflect as much as we can. The event was graced by Mrs. Mohana of Sharp Industries, KG Bhakthavatsalam of KG Hospitals and Mrs. Rohini of Avinashilingam University. We would like to thank all the volunteers and the other dignitaries for their presence.